Resources for Families and Caregivers

In The News

• What actually is palliative care? – The Conversation | Aug. 3, 2023
• A Piece of My Mind: The Fall – JAMA | July 28, 2023
• Building scale, payer mix crucial for palliative care startups – Palliative Care News | May 8, 2023
• To succeed in palliative care, providers must understand their partners’ problems – Palliative Care News | April 24, 2023
• Biden announces actions to improve, expand homecare access – HomeCare | April 18, 2023
• Addressing tension over the future of telehealth in palliative care – CAPC | March 28, 2023
• Don’t say they lost their battle with cancer, dementia or depression – NPR | Feb. 28, 2023
• What caregivers should know about palliative care – AARP | Feb. 21, 2023
• New developments and barriers to palliative care – Chest Physician | Feb. 3, 2023
• Hospice, palliative care leaders foresee ‘a new normal’ for 2023 – Hospice News | Dec. 19, 2022
• What I wish I knew about palliative care when caring for my mom – Health | Dec. 5, 2022
• More than medicine: a holistic approach to care – The Daily Pennsylvanian | Nov. 11, 2022
• Dementia caregivers urgently need early access to palliative care support – The Hill | Sept. 28, 2022
• Palliative care frightens some people; here’s how it helps – Harvard Medical School | Sept. 14, 2022
• Payers to CMMI: We need a standardized definition for palliative care – Hospice News | Sept. 6, 2022
• Palliative care collaborative Aotearoa calls for urgent action, says end-of-life care ‘overlooked and under resourced’ – NewsHub | Aug. 22, 2022
• Researchers test new model for enhancing health equity in palliative care – Hospice News |Aug. 1, 2022
• Palliative care a ‘huge opportunity’ – Hospice News | July 15, 2022
• Augmented intelligence tool helps ensure timely referrals to palliative care for patients with advanced cancer – Pharmacy Times, July 12, 2022
• Through education, collaboration, hospices can help share value-based palliative care – Hospice News |May 16, 2022
• Researchers: Nearly 90% of Americans do not understand palliative care – Hospice News | June, 8, 2021
• Kaiser Study: 90% of patients’ end-of-life goals met after advance care planning – Hospice News | May 14, 2021
• A brief but spectacular take on the importance of palliative care in rural communities – PBS | April 1, 2021
• Community-based palliative care benefit could shake up the home health market – Home Health Care News |March 28, 2021
• Palliative care works, so why is it rarely used? Follow the money – STAT, March 23, 2021

Research & Studies

• Early palliative care among patients diagnosed with advanced cancers in the US (2010-2019): Trends and contribution of provider variation – American Society of Clinical Oncology | 2024 Annual Meeting
• Physician shortage: Better utilization of APRNs in palliative medicine could provide relief – Florida TaxWatch | June 1, 2023
• Incorporating supportive and palliative oncology care in advanced practice – Oncology Nurse Advisor | May 4, 2023
• Palliative care decreases hospital readmissions in ovarian cancer – CURE | March 27, 2023
• Improved palliative care practices through machine-learning prediction of 90-day risk of mortality following hospitalization – NEJM Catalyst | Dec. 21, 2022
• Goal-Concordant Care: End-of-life planning conversations for all seriously ill patients – NEJM Catalyst | December 2022
• Emergency department embedded palliative care service creates value for health systems – Journal of Palliative Medicine | Nov. 11, 2022
• Palliative care for chronically critically ill infants – Physicians Weekly | Nov. 8, 2022
• Palliative care programs in children’s hospitals – American Academy of Pediatrics | Sept. 12, 2022
• What matters most to patients and families at end of life: Findings from Quality of Death & Dying Index | Jan. 24, 2022
• The children’s palliative care provider of the future – Imperial College London’s Institute for Global Health Innovation | 2022
• Cross country comparison of expert assessments of the quality of death and dying 2021 | Dec. 21, 2021
• Predictors of palliative care knowledge: Findings from the Health Information National Trends Survey | July 1, 2021
• Advance care planning for Medicare beneficiaries increased substantially, but prevalence remained low – Health Affairs | April 2021
• Measuring the effectiveness in community-based palliative care programs – Journal of Social Science and Medicine | March 2022
• The escalating global burden of serious health-related suffering: projections to 2060 – The Lancet Global Health | July 2019
• The Five Trajectories: Supporting Patients Through Serious Illness – CSU Shiley Institute for Palliative Care | 2018
• The Case for Hospital Palliative Care – CAPC | 2018

Palliative Care Organizations

• American Academy of Hospice & Palliative Medicine
• Center to Advance Palliative Care (CAPC)
• Coalition to Transform Advanced Care (C-TAC)
• Emory University Palliative Care Center
• Florida Hospice & Palliative Care Association
• International Association for Hospice & Palliative Care
• National Academy for State Health Policy
• National Coalition for Hospice & Palliative Care
• National Institute on Aging
• National Palliative Care Research Center
• Palliative Care Network of Wisconsin
• University of Pittsburgh’s Palliative Research Center
• Weill Cornell Medicine Geriatrics & Palliative Medicine

Helpful Resources

• 2023 Palliative Care Conference Webinar Series | Hospice News and Axxess
• 2022 ACT Index | C-TAC
• Advance Care Planning Quick Guide | The John A. Hartford Foundation
• Educating Social Workers in Palliative & End-of-Life Care | National Association of Social Workers
• Florida Patient’s Bill of Rights & Responsibilities | State of Florida
• Journal of Palliative Medicine | National Institutes of Health
• Key Facts About Palliative Care | World Health Organization
• Palliative Care in Cancer | National Cancer Institute
• Palliative care law and GPS | Yale University
• Palliative care provider directory | Center to Advance Palliative Care
• Palliative Care Quick Guide | The John A. Hartford Foundation
• Primer of Palliative Care, 7th Edition | AAHPM
• Principles of Palliative Care | American Academy of Surgeons
• Serious Illness Messaging Toolkit: Talking to the Public About Advance Care Planning, Palliative Care & Hospice | The John A. Hartford Foundation
• State-by-state report cards | Center to Advance Palliative Care
• The Conversation Project | Institute for Health Care Improvement
• Understanding Palliative Care | American Cancer Society
• Veterans and Palliative Care |U.S. Department of Veterans Affairs