Resources for Families and Caregivers
- Supporting Family Caregivers of Nursing Home Residents with Dementia in Their Last Week of Life: A Survey Among Bereaved Family Caregivers | Palliative Medicine Reports
- 11 Tips for When Families or Patients Insist on Inappropriate Code Status
- Caring For Another: Advanced Illness and End of Life – Family Caregiver Alliance
- Resources for Long-Distance Family Caregiver | Caregiver Action Network
In The News
- What actually is palliative care? – The Conversation | Aug. 3, 2023
- A Piece of My Mind: The Fall – JAMA | July 28, 2023
- Building scale, payer mix crucial for palliative care startups – Palliative Care News | May 8, 2023
- To succeed in palliative care, providers must understand their partners’ problems – Palliative Care News | April 24, 2023
- Biden announces actions to improve, expand homecare access – HomeCare | April 18, 2023
- Addressing tension over the future of telehealth in palliative care – CAPC | March 28, 2023
- Don’t say they lost their battle with cancer, dementia or depression – NPR | Feb. 28, 2023
- What caregivers should know about palliative care – AARP | Feb. 21, 2023
- New developments and barriers to palliative care – Chest Physician | Feb. 3, 2023
- Hospice, palliative care leaders foresee ‘a new normal’ for 2023 – Hospice News | Dec. 19, 2022
- What I wish I knew about palliative care when caring for my mom – Health | Dec. 5, 2022
- More than medicine: a holistic approach to care – The Daily Pennsylvanian | Nov. 11, 2022
- Dementia caregivers urgently need early access to palliative care support – The Hill | Sept. 28, 2022
- Palliative care frightens some people; here’s how it helps – Harvard Medical School | Sept. 14, 2022
- Payers to CMMI: We need a standardized definition for palliative care – Hospice News | Sept. 6, 2022
- Palliative care collaborative Aotearoa calls for urgent action, says end-of-life care ‘overlooked and under resourced’ – NewsHub | Aug. 22, 2022
- Researchers test new model for enhancing health equity in palliative care – Hospice News |Aug. 1, 2022
- Palliative care a ‘huge opportunity’ – Hospice News | July 15, 2022
- Augmented intelligence tool helps ensure timely referrals to palliative care for patients with advanced cancer – Pharmacy Times, July 12, 2022
- Through education, collaboration, hospices can help share value-based palliative care – Hospice News |May 16, 2022
- Researchers: Nearly 90% of Americans do not understand palliative care – Hospice News | June, 8, 2021
- Kaiser Study: 90% of patients’ end-of-life goals met after advance care planning – Hospice News | May 14, 2021
- A brief but spectacular take on the importance of palliative care in rural communities – PBS | April 1, 2021
- Community-based palliative care benefit could shake up the home health market – Home Health Care News |March 28, 2021
- Palliative care works, so why is it rarely used? Follow the money – STAT, March 23, 2021
Research & Studies
- Does Reframing Do Not Resuscitate to Beneficial Care Only Increase Acceptance of No-CPR Orders? – Chest Journal | January 2025
- Addressing Inadequate Documentation of Unilateral Do-Not-Resuscitate Orders Home – American Medical Association| January 13, 2025
- Development of and Testing Novel Questionnaires Assessing Palliative Care-Related Knowledge, Attitudes, and Confidence Among Home Healthcare Clinicians, Patients, and Caregivers– Home Healthcare Now | January/February 2025
- Early palliative care among patients diagnosed with advanced cancers in the US (2010-2019): Trends and contribution of provider variation – American Society of Clinical Oncology | 2024 Annual Meeting
- Physician shortage: Better utilization of APRNs in palliative medicine could provide relief – Florida TaxWatch | June 1, 2023
- Incorporating supportive and palliative oncology care in advanced practice – Oncology Nurse Advisor | May 4, 2023
- Palliative care decreases hospital readmissions in ovarian cancer – CURE | March 27, 2023
- Improved palliative care practices through machine-learning prediction of 90-day risk of mortality following hospitalization – NEJM Catalyst | Dec. 21, 2022
- Goal-Concordant Care: End-of-life planning conversations for all seriously ill patients – NEJM Catalyst | December 2022
- Emergency department embedded palliative care service creates value for health systems – Journal of Palliative Medicine | Nov. 11, 2022
- Palliative care for chronically critically ill infants – Physicians Weekly | Nov. 8, 2022
- Palliative care programs in children’s hospitals – American Academy of Pediatrics | Sept. 12, 2022
- What matters most to patients and families at end of life: Findings from Quality of Death & Dying Index | Jan. 24, 2022
- The children’s palliative care provider of the future – Imperial College London’s Institute for Global Health Innovation | 2022
- Cross country comparison of expert assessments of the quality of death and dying 2021 | Dec. 21, 2021
- Predictors of palliative care knowledge: Findings from the Health Information National Trends Survey | July 1, 2021
- Advance care planning for Medicare beneficiaries increased substantially, but prevalence remained low – Health Affairs | April 2021
- Measuring the effectiveness in community-based palliative care programs – Journal of Social Science and Medicine | March 2022
- The escalating global burden of serious health-related suffering: projections to 2060 – The Lancet Global Health | July 2019
- The Five Trajectories: Supporting Patients Through Serious Illness – CSU Shiley Institute for Palliative Care | 2018
- The Case for Hospital Palliative Care – CAPC | 2018
Palliative Care Organizations
- American Academy of Hospice & Palliative Medicine
- Center to Advance Palliative Care (CAPC)
- Coalition to Transform Advanced Care (C-TAC)
- Emory University Palliative Care Center
- Florida Hospice & Palliative Care Association
- International Association for Hospice & Palliative Care
- National Academy for State Health Policy
- National Coalition for Hospice & Palliative Care
- National Institute on Aging
- National Palliative Care Research Center
- Palliative Care Network of Wisconsin
- University of Pittsburgh’s Palliative Research Center
- Weill Cornell Medicine Geriatrics & Palliative Medicine
Helpful Resources
- Educating Social Workers in Palliative and End-of-Life Care (ESPEC) | National Association of Social Workers
- 2023 Palliative Care Conference Webinar Series | Hospice News and Axxess
- 2022 ACT Index | C-TAC
- Advance Care Planning Quick Guide | The John A. Hartford Foundation
- Educating Social Workers in Palliative & End-of-Life Care | National Association of Social Workers
- Florida Patient’s Bill of Rights & Responsibilities | State of Florida
- Journal of Palliative Medicine | National Institutes of Health
- Key Facts About Palliative Care | World Health Organization
- Palliative Care in Cancer | National Cancer Institute
- Palliative care law and GPS | Yale University
- Palliative care provider directory | Center to Advance Palliative Care
- Palliative Care Quick Guide | The John A. Hartford Foundation
- Primer of Palliative Care, 7th Edition | AAHPM
- Principles of Palliative Care | American Academy of Surgeons
- Serious Illness Messaging Toolkit: Talking to the Public About Advance Care Planning, Palliative Care & Hospice | The John A. Hartford Foundation
- State-by-state report cards | Center to Advance Palliative Care
- The Conversation Project | Institute for Health Care Improvement
- Understanding Palliative Care | American Cancer Society
- Veterans and Palliative Care |U.S. Department of Veterans Affairs
